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Are you new? Stop in and say hi!

Ultimo Messaggio: Writing a screenplay about HD di TaylorTheShadow
18 376 3530
General discussion

Open space to discuss completely random subjects or anything HD

Ultimo Messaggio: Here's my story di Matt
45 202 1169

Getting tested

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At risk

Discuss being at risk for HD

Ultimo Messaggio: How do you feel about being at risk? di DarylDixon
3 51 346

A space to discuss feelings on predictive testing

Ultimo Messaggio: Waiting for results... Any advice? di HDgirl
11 127 804
Tested Positive

Tested positive? Discuss your feelings here

Ultimo Messaggio: Tested positive- looking to meet people di Anna27
7 103 847
Tested Negative

Tested negative? Share your feelings here

Ultimo Messaggio: Testing negative di Jenny90
1 12 130

Living with HD

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Young carers

A space for young people who are caring for someone with HD

Ultimo Messaggio: Your experiences of being a young carer di Erlend
2 8 79
Living in a family with HD

Share feelings and experiences of growing up in a family with HD

Ultimo Messaggio: Experiences of living in a family with HD di Matt
3 36 268
Having children

Thinking of having children? Discuss your thoughts or share experiences here

Ultimo Messaggio: Experiences of having children di Ally
2 42 321

Share your fundraising or seek advice/tips

Ultimo Messaggio: Where do I begin? di Matt
5 13 107

Seek advice or share experiences on how to get involved with research, and discuss new research updates

Ultimo Messaggio: HTT-Rx di lamby88
6 31 151

A space for partners of those impacted by HD

Ultimo Messaggio: Partners: how are you dealing with knowing your parther is diagnosed with HD? di Chelsie
2 8 69

A section for parents of young people impacted by HD

Ultimo Messaggio: Talking to the children di Dr.Lange
1 23 116

An area for JHD families to share and discuss their feelings and experiences

Ultimo Messaggio: Understanding di Ally
1 2 23


Forum Topics Posts Visite

Discuss the articles on the HDYO site here

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